How can loneliness and social isolation be reduced among migrant and minority ethnic people? Systematic, participatory review of programme theories, system processes and outcomes

A person walking through a forest with a plastic bag that says bargains for life

Funded by NIHRFunded by the UK National Institute for Health Research under the Public Health Research Board (Reference number PHR 16/08/44) 

 What are the aims of this project?

The main aim of this project is to summarise the existing evidence on the causes of, and potential solutions to, unwanted social isolation and loneliness among people from migrant and minority ethnic backgrounds. The project takes a broad approach, viewing social isolation and loneliness as the products of the complex social settings within which people live.

 Why is this important?

Loneliness and social isolation are recognised as major public health issues. Both have been found to be associated with a range of physical and mental health problems. Recent research addressing the negative effects of loneliness and social isolation on the health and wellbeing of individuals has paid particular attention to the circumstances of older people, pregnant and postpartum women and adolescents.

While loneliness and social isolation affect people from all sections of society, migrants and people from minority ethnic backgrounds face particular risks of social isolation and loneliness. As the diversity of the UK population continues to grow in terms of the range of ethnic identities and the number of people seeing themselves as non-White British, it becomes important that public health evidence and practice reflects this diversity and addresses the needs of our multi-ethnic society.

 How will the research be carried out?

We will undertake a review of the existing literature and research evidence around loneliness and social isolation among migrant and minority ethnic groups. This desk-based work will take place alongside the use of a participatory approach, involving consultations with key stakeholders and members of some of our local migrant and minority ethnic communities within England.

Our literature review work will consist of an effectiveness review; and a theory-driven review. The effectiveness review will draw together earlier research that has looked at whether initiatives that have been introduced work to reduce levels of loneliness and social isolation among migrant and minority ethnic people. The theory-driven review, on the other hand, will go beyond more traditional review methods to understand the actual causal processes that may be linked to changes in levels of loneliness and social isolation among our populations of interest in varied settings. We will look beyond narrowly focused interventions aimed at individuals to explore the wider social processes that impact upon isolation and loneliness.

Timeframe:

October 2017 – March 2019

Who is undertaking the research?

Professor Sarah Salway, Dr Louise Preston, Dr Andrew Booth, Dr Liz Such, Dr Katie Powell, Dr Maria Zubair, Dr Jean Hamilton (University of Sheffield) &

Professor Raghu Raghavan (De Montfort University)

Professor Christina Victor (Brunel University London)

  How are stakeholders being engaged?

The project involves close collaboration between university researchers, community workers, lay experts from migrant and minority ethnic backgrounds and public health practitioners and policy makers. The community consultation aspect of the project, in particular, involves significant community engagement. This comprises three consultation panels being organised at three different sites within England, each focussing on different subgroups of migrants and minority ethnic people and taking place twice during the course of the project. Furthermore, a dissemination workshop will be arranged towards the end of the project for a diverse group of around 30 stakeholder participants in order to promote engagement with and testing out of the recommendations and conclusions from the project.

What will be the outputs from the study?

Presentations and papers from the project will be listed here.

How can loneliness and social isolation be reduced among migrant and minority ethnic people? Systematic, participatory review of programme theories, system processes and outcomes. Sarah Salway, Louise Preston, Maria Zubair, Elizabeth Such, Jean Hamilton, Andrew Booth, Raghu Raghavan, Christina Victor

PROSPERO 2017 CRD42017077378 Available from:

http://www.crd.york.ac.uk/PROSPERO/display_record.php?ID=CRD42017077378


Evidence and Ethnicity in Commissioning

evidence and ethnicity

A multidisciplinary team of researchers and healthcare managers working to improve the commissioning and delivery of health services for multi-ethnic populations in England. We have a particular focus on improving the mobilisation of knowledge to identify, describe and understand ethnic inequalities in health and healthcare and to support evidence-informed interventions to reduce these inequalities. Sarah SalwayLynne Carter

View the team website.


Race, ethnicity and child development

 Funded by University of Sheffield Economics Department 

 What are the aims of this project?

This research aims to explore the effects of racism, experienced directly or indirectly, on child development and childhood outcomes.

 Why is this important?

From an early age, children interact with other children and adults within and outside of the family environment, and the outcomes of these interactions may shape child development and wellbeing. In addition, the interactions of parents with wider society may also play a role in shaping child outcomes if children witness these interactions or if these interactions influence the parenting received by the child. To date, there is very little evidence on the extent to which child and parental interactions with wider society matter for child development and wellbeing. We will address this issue by looking specifically at the effect of racism, which children may experience directly or vicariously through the experiences of parents, on children’s outcomes.

How will the research be carried out?

We will undertake a literature review to examine measures of racism and ways of exploring the relationships between racism and child outcomes. We will analyse secondary survey and cohort data to examine relationships between experience of racism and racist incidents and indicators of child development.

Timeframe:

February 2015 – March  2016

Who is undertaking the research?

Dr Ana Nuevo-Chiqeuro (Economics), Dr Anita Ratcliffe (Economics), Dr Gurleen Popli (Economics), Professor Sarah Salway (ScHARR)

How are stakeholders being engaged?

The project will engage with stakeholders including members of the public and policy and practice communities via a one day conference to be held in January 2016.

What will be the outputs from the study?

Findings will be used to inform the development of a more detailed, follow on research study. Findings will also be shared through presentations and academic papers.


Enhancing community genetic literacy

Funded by Genetic Disorders UK and CLAHRC Yorkshire & Humber

 What are the aims of this project?

This project aims to develop materials and approaches for enhancing genetic literacy at community level with a focus on the genetic risk associated with customary consanguineous marriage.

 Why is this important?

Populations that practice customary consanguineous marriage have higher rates of infant mortality and lifelong disability due to a heightened risk of autosomal recessive genetic conditions. WHO recommends: training health professionals, raising genetic literacy at population level, and focused services for families at risk. However, UK service responses are in their infancy and most people at risk have little or no understanding on which to make informed decisions. The need to increase understanding and develop appropriate services has been identified in Sheffield at both community and professional levels.

This project links to our wider programme of work on developing an appropriate service response to genetic risk associated with customary consanguineous marriage.

 How will the research be carried out?

A participatory, action research project has been adopted with the goal of developing, delivering and evaluating a community-based genetic literacy and support model. Working closely with community researchers, we undertook an iterative process of generating insight, developing materials and testing our approach.  Follow on work is now underway to evaluate more rigorously an informational video that has been developed.

Timeframe:

March 2013 – March 2016

Who is undertaking the research?

Professor Sarah Salway, Dr Parveen Ali, Saima Ahmed (Pakistan Advice & Community Association), Dr Liz Such

 How are stakeholders being engaged?

The project involves close collaboration between university researchers, public health practitioners and community based organisations. The participatory approach involved community researchers who were trained and supported to gather and analyse data in their communities. An advisory group was convened to provide critical commentary on the initial research, involving lay and professional members. The project now reports regularly to the Sheffield Community Genetics Working Group. Findings and progress are shared regularly across the region with stakeholders.

What will be the outputs from the study?

A video has been developed and is available on request s.salway@sheffield.ac.uk

A presentation on the project was delivered by Sarah Salway at the Lancet/UCL Public Health Science conference in Glasgow in November, 2014.Towards enhanced community genetic literacy among a minority ethnic community: a participatory action research project


Cascading genetic information within families

Funded by Sheffield Children’s Hospital Charity 

 What are the aims of this project?

This research aims to understand in detail patients’ and providers’ perspectives on the issue of cascading genetic information and services within families.

 Why is this important?

The inherited nature of genetic health conditions makes them a family concern. When one person is diagnosed with a genetic condition, this raises questions about the risk of illness for related individuals, including children yet to be born. However, sharing information among family members may not be straightforward, raising a host of personal, ethical and practical issues. This is particularly so for conditions where individuals can be healthy carriers, living life unaware of the genetic risk that they carry. As genetic technologies develop and testing for even very rare conditions expands, there is a growing need to develop effective and appropriate approaches to offering genetic services to wider family members. Furthermore, increasing ethnic and religious diversity of the population makes it important that such approaches are adequately responsive to diverse patient needs. Indeed, advances in genetic services must be made as accessible to all groups of people as possible. Currently we know little about the factors that encourage or discourage genetics service users – particularly those from minority ethnic groups – from sharing information with other family members (we call this ‘cascading’). This gap in understanding makes it difficult for service providers to know how to approach this issue effectively.

This project links to our wider programme of work on developing an appropriate service response to genetic risk associated with customary consanguineous marriage.

 How will the research be carried out?

We will carry out detailed interviews with service users from a range of ethnic and religious backgrounds, and also with genetic counsellors working within the Regional Genetics Service at Sheffield Children’s Hospital. Initial findings will be shared in a participatory workshop with stakeholders to explore possible modifications to current practice.

Timeframe:

March 2014 – December 2016

Who is undertaking the research?

Professor Sarah Salway, Dr Oliver Quarrell (Sheffield Children’s Hospital), Dr Parveen Ali.

 How are stakeholders being engaged?

The project involves close collaboration between university researchers, clinicians and healthcare professionals and Sheffield Children’s Hospital. An advisory group has been convened to provide critical commentary on the research, involving lay and professional members.

What will be the outputs from the study?

Findings will be used to inform the development of improved approaches to cascading with the aim of testing in a follow on study.

Presentations and papers will be prepared for both professional and lay audiences.


CATH-B Study

CATH-B Study (Chinese community Access to Treatment for Hepatitis-B). Identifying and addressing barriers to healthcare access for Hepatitis B in UK Chinese populations.

Funder

Policy Research Programme, Department of Health – (NIHR adopted)

What are the aims of this project?

This study aims to identify drivers for the gap in healthcare access and provision for Chinese residents living in the UK by discussions with both the community and health professionals serving them.

Why is this important?

Migrant Chinese communities’ prevalence of Hepatitis B infection approaches 10%. South Yorkshire Chinese residents constitute 0.2-1.3% of the population. UK and international studies demonstrate low access to local health systems and many cases of late diagnosis.

How will the research be carried out?

The project methodology combines inductive qualitative research methods with knowledge translation approaches to (i) generate new insight into the barriers and supports to appropriate healthcare access for Hepatitis B among high prevalence groups and (ii) apply this evidence to the development of potential interventional strategies at policy and practice level. Qualitative methods will comprise: Focus group discussions (FGDs) with members of the Chinese community; Key informant interviews with members of the Chinese community; Individual interviews with healthcare professionals involved in key areas of care and policy formulation.

Timeframe:

Due to be completed by the end of 2015

Who is undertaking the research?

Sheffield Teaching Hospitals NHS Foundation Trust

Lead Investigator: Alicia Vedio
Co-investigators: Ben Stone, Steve Green

School of Health and Related Research, University of Sheffield

Principal Investigator: Andrew Lee
Co-investigators: Eva Liu, Sarah Salway, Jason Horsley, Elizabeth Goyder

How are stakeholders being engaged?

Study design and recruitment advice via public consultation and appointment panel for Research Fellow – Sheffield Chinese Community Centre
Research Advisory Group – Two members belonging to UK Chinese Community Groups.
Design of Information Sheet and Consent Form via STH Research Patient and Public Involvement Group – Two members of such panel of Far East origin

What will be the outputs from the study?

Identifying common themes both in the community and professionals will inform efforts to design and evaluate support tools for the community and professionals involved, and help to formulate policy to address service gaps.

Find out more here:

http://hitsheffield.org/research

http://public.ukcrn.org.uk/Search/StudyDetail.aspx?StudyID=16562

http://www.invo.org.uk/resource-centre/research-project-database/research-project/?id=807

 

 

 


 


Tailoring physical activity interventions to meet the needs of minority ethnic groups in England

This project is supported by CLAHRC YH

Aims of this project

  1. To establish the characteristics of physical activity interventions/programmes that prioritise minority ethnic community participation in England
  2. To identify the characteristics of ‘tailoring’ of interventions that account for minority ethnic population needs

Why is this important?

Adapted public health interventions have widespread support as a means of challenging health inequity. Minority ethnic populations in the UK and across the Global North continue to display disadvantage in several health domains such as cardio-vascular disease and diabetes (Bhopal 2009). Physical activity interventions can play a positive role in reducing the risk of such conditions. Rates of participation in physical activity among minority ethnic populations are, however, low relative to the White British population in the UK. This research uses an existing national database to examine the characteristics of physical activity interventions intended for diverse populations. It is an opportunity to assess the current ‘state of the field’ and areas of emergent practice.

How will the research be carried out?

Analysis of an English database of physical activity interventions has been used to identify and analyse adaptations for minority ethnic participation. From this, case studies have been built to demonstrate good practice.

Timeframe: November 2014-December 2015

Who is undertaking the research?

Liz Such

How are stakeholders being engaged?

Stakeholders are being consulted in the identification and exploration of case studies and in ‘sense checking’ of the findings on adaptation.

What will be the outputs from the study?

A case study summary will be produced for consultation with community based organisations and other local partners. A peer reviewed journal paper.

 

 


Identifying promising innovations to enhance equity and efficiency in care for new migrant populations

Funder: Sheffield Clinical Commissioning Group

Aims of this project

  1. To undertake a mapping and formative evaluation of innovative practice at the primary care-community interface related to meeting the needs of new migrant populations
  2. To identify a promising package of innovation that warrants further refinement and testing
  3. To develop research capacity among primary care colleagues and strengthen research-practice linkages to support knowledge translation.

Why is this important?

Access to primary care has been identified as one of the key means through which health inequity can be reduced (Browne et al 2012). New migrant populations may be marginalised from the process of service access for several reasons. Service response to new migrant population growth at the local, primary care level often requires innovation, transgression from standard models of service delivery and commissioning and service responsiveness, including new ways of engaging with under-served populations. The purpose of the research is to map these innovations and provide case studies of promising practice.

How will the research be carried out?

The formative review will include a broad scoping exercise in the first instance followed by an in-depth case study approach to mapping innovation. It will be carried out in partnership with primary care and community based organisations to develop a Local Innovation Partnership. Principles of co-production and participatory methods will be adopted.

Timeframe:

September 2015-March 2016

Who is undertaking the research?

Liz Such, Liz Walton, Sarah Salway, Janet Harris and Brigette Colwell

How are stakeholders being engaged?

In local case study sites, local practitioners will be engaged in a Local Innovation Partnership. Local residents will consulted about service provision through Patient and Public Engagement activities.

What will be the outputs from the study?

A Summary and Mini Casebook will be produced to demonstrate how and why local innovations can enhance new migrants’ access to primary care.